- Features input from leading research experts in the field
- Describes cutting-edge research on longitudinal studies that link neurodevelopmental phenotypes with cutting-edge neuroimaging studies
- Discusses the first series of early intervention studies developed in Belfast targeted at key developmental transitions—birth and diagnosis, early childhood, and adolescence
- Includes clinical implications and action points in each section
- Features generalizable potential of interventions across other pediatric populations
Table of Contents
Part I: Hearts and Minds
1. Congenital Heart Disease: The Evolution of Diagnosis, Treatments and Outcomes
2. Historical Perspectives in Pediatric Psychology and Congenital Heart Disease
Part II: Towards a Neurodevelopmental Phenotype
3. A Longitudinal Study from Infancy to Adolescence of the Neurodevelopmental Phenotype Associated with d-Transposition of the Great Arteries
David C. Bellinger and Jane W. Newburger
4. Neurodevelopmental Patterns in Congenital Heart Disease across Childhood – Longitudinal Studies from Europe
Hedwig H. Hövels-Gürich and Christopher McCusker
5. An Emergent Phenotype: A Critical Review of Neurodevelopmental Outcomes for Complex Congenital Heart Disease Survivors During Infancy, Childhood, and Adolescence
Maria Kharitonova and Bradley S. Marino
Part III: Psychological profiles and processes
6. Is There a Behavioural Phenotype for Children with Congenital Heart Disease?
Christopher McCusker and Frank Casey
7. A Family Affair
Nicola Doherty and Elisabeth Utens
8. The Adult with Congenital Heart Disease
Danielle Emily Katz, Maria Chaparro and Adrienne Kovacs
Part IV: Interventions
9. The Congenital Heart Disease Intervention Programme (CHIP) and Interventions in Infancy
Nicola Doherty and Christopher McCusker
10. Growing up - Interventions in Childhood
11. Healthy Teenagers and Adults – An Activity Intervention
Margaret Louise Morrison and Frank Casey
12. Conclusions and Future Directions for Neurodevelopmental Research and Interventions in Congenital Heart Disease
- No. of pages: 214
- Language: English
- Copyright: © Academic Press 2016
- Published: May 3, 2016
- Imprint: Academic Press
- eBook ISBN: 9780128017920
- Paperback ISBN: 9780128016404
About the Editors
For the past 15 years his research has focused on understanding the determinants of outcomes for children with chronic illness and their families. This has been across pediatric specialisms including acquired brain injury, epilepsy, neurodevelopmental disorders and congenital heart disease. He has authored numerous publications in these domains and, most importantly, has translated knowledge of risk and protective factors into new progams of early psychological interventions to promote resilience in these children and their families. In this book he presents the Congenital Heart disease Intervention Progam (CHIP) which is the first of such programs internationally for these children and their families.
Affiliations and Expertise
He trained In Paediatric Cardiology in Belfast and at The Hospital for Sick Children Toronto.
Dr. Casey is the Clinical Lead for the newly developed All-Ireland Paediatric Cardiology Network. He is also the Chairperson of The Psychosocial Working group of The Association for European Paediatric and Congenital Cardiology.
For more than 20 years he has led a research program in Belfast focused on the Biophysical, Neurodevelopmental and Psychosocial outcome for children with congenital heart disease. This work has pioneered interventional programs to modify lifestyle behaviors in children treated for congenital heart disease including the landmark Congenital Heart Disease Intervention Program described in this book. He has many publications from that research program and is recognized as an International leader in this area of work.
Affiliations and Expertise
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