Primary Care of the Child with a Chronic Condition

By

  • Patricia Jackson Allen, RN, MS, PNP, FAAN, Professor, Director Pediatric Nurse Practitioner Specialty, Yale School of Nursing, New Haven, CT; Clinical Professor, Director, Advanced Practice Pediatric Nursing Program, Department of Family Health Care Nursing, University of California, San Francisco, San Francisco, CA, USA
  • Judith Vessey, RN, PhD, MBA, DPNP, FAAN, Lelia Holden Carroll Endowed Professor of Nursing, Boston College of Nursing, Chestnut Hill, MA
  • Naomi Schapiro

Written by nurse practitioners for nurse practitioners, this one-of-a-kind resource provides the expert guidance you need to provide comprehensive primary care to children with special needs and their families. It addresses specific conditions that require alterations in standard primary care and offers practical advice on managing the major issues common to children with chronic conditions. A consistent format makes it easy to locate essential information on each condition. Plus, valuable resources help you manage the issues and gaps in health care coverage that may hinder quality care.
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Book information

  • Published: June 2009
  • Imprint: MOSBY
  • ISBN: 978-0-323-05877-3


Table of Contents

Part One: Concepts in Primary Pediatric Care

1. The Primary Care Provider and Children with Chronic Conditions

2. Chronic Conditions and Child Development

3. School and the Child with a Chronic Condition

4. Transitions to Adulthood

5. Chronic Conditions and the Family

6. Family Culture and Chronic Conditions

7. Ethics and the Child with a Chronic Condition

8. Financing Health Care for Children with Chronic Conditions

9. Systems of Care for Children with Chronic Conditions


Part Two: Chronic Conditions

10. Allergies

11. Asthma

12. Attention Deficit Hyperactivity Disorder

13. Autism

14. Bleeding Disorders

15. Bone Marrow Transplantation

16. Cancer

17. Celiac Disease—NEW!

18. Cerebral Palsy

19. Cleft Lip and Palate

20. Congenital Adrenal Hyperplasia

21. Congenital Heart Disease

22. Cystic Fibrosis

23. Diabetes Mellitus (Types 1 and 2)

24. Down Syndrome

25. Eating Disorders—NEW!

26. Epilepsy

27. Fragile X Syndrome

28. HIV Infection and AIDS

29. Hydrocephalus

30. Inflammatory Bowel Disease

31. Juvenile Rheumatoid Arthritis

32. Kidney Disease, Chronic

33. Mood Disorders

34. Muscular Dystrophy—NEW!

35. Myelodysplasia

36. Obesity—NEW!

37. Organ Transplantation

38. Phenylketonuria

39. Prematurity

40. Sickle Cell Disease

41. Tourette Syndrome and Obsessive-Compulsive Disorder

42. Traumatic Brain Injury