Management of Patients with Neuromuscular Disease

1st Edition

Authors: John Bach
Paperback ISBN: 9781560536048
eBook ISBN: 9781437711448
Imprint: Hanley & Belfus
Published Date: 4th August 2003
Page Count: 350

Description

A great majority of people with neuromuscular diseases like muscular dystrophy, ALS, spinal muscular atrophy, myasthenia gravis and post-poliomyelitis continue to be told that they have "terminal illnesses" and are not offered management options that can spare them of cardiopulmonary morbidity and mortality. This book is unique in offering viable management alternatives that result in a patients prolonged survival and enhanced quality of life.

Key Features

  • Unique because it offers descriptions of how to eliminate the respiratory or cardiac causes of complications and death for neuromuscular diseases.
  • Emphasizes the home care/management of severe disabled individuals with neuromuscular disorders and those who require ventilator use.
  • Describes inexpensive methods of clearing airway secretions and preventing episodes of respiratory failure that would otherwise necessitate hospitalizations and expensive, invasive interventions like tracheotomy or result in the patient's death. Important in the third world where this could prevent many deaths.

Table of Contents

Section 1: General Evaluation and Management Concerns
1. Disease Assessment and Evolution
2. Medical Therapies and Research
3. Nutrition
4. Swallowing and Gastrointestinal Concerns
5. Cardiac Management

Section 2: The Physical Intervention Stages
6. Stage 1: The Ambulatory Stage
7. Stage 2: Stage of Loss of Ambulation
8. Conventional "End-Stage" Management

Section 3: The Stage of Prolonged Quality Survival
9. The Physiological Basis of Aiding Respiratory Muscles
10. Noninvasive Respiratory Muscle Aids, Intervention Goals, and Mechanisms of Action
11. Respiratory Muscle Aids: Patient Evaluation, Respiratory Aid Protocol, and Outcomes
12. Pediatrics Respiratory Management
13. Quality of Life and Ethical Issues

Details

No. of pages:
350
Language:
English
Copyright:
© Hanley & Belfus 2004
Published:
Imprint:
Hanley & Belfus
eBook ISBN:
9781437711448
Paperback ISBN:
9781560536048

About the Author

John Bach

Affiliations and Expertise

Professor of Physical Medicine & Rehabilitation, Vice Chairman, Department of Physical Medicine & Rehabilitation, Professor of Neuroscience, Codirector, Jerry Lewis Muscular Dystrophy Association Clinic, UMDNJ--The New Jersey Medical School, Newark, NJ