Integrating Mental Health and Disability Into Public Health Disaster Preparedness and Response

1st Edition - August 18, 2022
Authors: Jill Morrow-Gorton, Susan Wolf-Fordham, Katherine Snyder
Language: English
Paperback ISBN:
9 7 8 - 0 - 1 2 - 8 1 4 0 0 9 - 3
eBook ISBN:
9 7 8 - 0 - 1 2 - 8 1 4 0 1 0 - 9

Integrating Mental Health and Disability into Public Health Disaster Preparedness and Response brings together the fields of mental/behavioral health, law, human rights, and medic… Read more

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Integrating Mental Health and Disability into Public Health Disaster Preparedness and Response brings together the fields of mental/behavioral health, law, human rights, and medicine as they relate to disaster planning and response for people with disabilities, mental and behavioral health conditions and chronic illness. Children and adults with disabilities, mental/behavioral health conditions and chronic illness remain more vulnerable to the negative effects of emergencies and disasters than the general population. This book addresses the effects of emotional trauma, personal growth and resilience, the impact on physical health and systems of care, and legal compliance and advocacy.

Following a philosophy of whole community emergency planning, inclusive of people with disabilities, the book advocates for considering and addressing these issues together in an effort to ultimately lead to greater resilience for individuals with disabilities and the whole community.

Cover image
Title page
Table of Contents
Copyright
Dedication
Preface
Introduction
Language used in this book
Other language
Chapter 1: Frameworks and models of disaster management theory: Setting the stage
Abstract
Introduction
What is a disaster?
History and evolution of emergency management
Emergency planning models
Public health framework
Vulnerability and resilience
Conclusion
Questions for thought
References
Chapter 2: Populations with disabilities and others with access and functional needs
Abstract
Introduction
Language
Access and functional needs
Demographics of people with access and functional needs
Children with disabilities
Coping during disasters
Questions for thought
References
Chapter 3: The world approach to disability-inclusive disaster management
Abstract
Introduction
The United Nations
Disaster reduction frameworks
United Nations disability and development
The World Health Organization
Social determinants of health
Mental health and disasters
International disability disaster programs
Conclusion
Questions for thought
References
Chapter 4: The impacts of disasters on people with disabilities and chronic physical and mental health conditions
Abstract
Introduction
Health disparities and negative health impacts from disasters
COVID-19
Disruptions to daily life
Lack of equal access
Infringement of legal rights
Calls to action
Impacts of emergencies on other populations with access and functional needs
Systems issues: The importance of having a seat at the table
Conclusion
Questions for thought
References
Chapter 5: Elements of individual resilience
Abstract
Introduction
Defining resilience
Vulnerability and adverse childhood events (ACEs)
Impacts of disaster on children
Effect of disasters on children in their families
Adult outcomes of disasters
Experience of disaster in people with disabilities
Resilience in individuals, children and families
Conclusion
Questions for thought
References
Chapter 6: The US emergency management and public health preparedness systems
Abstract
Introduction
Evolution of the American emergency system
Guiding principles and frameworks
The US emergency system structure
Disability inclusion gaps in the incident command system and local emergency plans
Other stakeholders: Disability organizations, voluntary disaster organizations and emergency responders
Structural challenges and silos (Fig. 6)
Traditional emergency plan development
Conclusion
Questions for thought
References
Chapter 7: Legal issues related to emergencies and disasters: Antidiscrimination and other selected issues
Abstract
Introduction
Overview of key nondiscrimination concepts
Disability definition and antidiscrimination standards
History of persistent challenges with ADA compliance
Project Civic Access
Federal litigation challenging the adequacy of local emergency plans
Litigation related to the effective communication mandate
Equity during medical resource shortages
Other civil rights statutes
Waiving HIPAA and other laws during a disaster or emergency
Conclusion
Questions for thought
References
Chapter 8: Whole community as inclusive emergency management and public health preparedness
Abstract
Introduction
The whole community philosophy and approach
Whole community philosophy statements in local emergency plans
Individuals with access and functional needs
The CMIST framework
The important role of disability and other community-based organizations within the whole community approach
Emergency manager and public health personnel beliefs about the whole community approach
Learning from civic engagement literature and practices
The whole community approach in practice_ Community Stakeholder Meetings
Conclusion
Questions for thought
References
Chapter 9: Building community resilience
Abstract
Introduction
Defining resilience
Elements of community resilience
Disaster resilience and disability
Building community resilience for all including people with disabilities
Measuring resilience
Conclusion
Questions for thought
References
Chapter 10: Promising practices in disability-inclusive disaster management
Abstract
Introduction
Structural, regulatory and policy changes
Inclusion of people with disabilities and access and functional needs
Building resilience
Behavioral health intervention
Conclusion
Questions for thought
References
Index

Jill Morrow-Gorton

Jill Morrow-Gorton MD, MBA, is an associate professor in the University of Massachusetts Medical School Departments of Pediatrics and Family and Community Medicine. As a Developmental and Behavioral Pediatrician, she works with people with disabilities and mental health disorders. As a State Medical Director in Pennsylvania, she participated in disability disaster planning with the Department of Health. She has also served as Medicaid Medical Director and LTSS clinical lead in Massachusetts. She has experience in clinical teaching and research in disabilities, quality evaluation and improvement activities, development of a toolkit for assessing emergency plans in community health centers, and hospital disaster planning.

Affiliations and expertise

University of Massachusetts Chan Medical School, Worcester, MA, United States

Susan Wolf-Fordham

Susan Wolf-Fordham JD, MPA, has advocated for disability policy and health equity issues for 25+ years, with 14 years’ work on emergencies, disasters, and pandemics. A local board of health member, she also teaches public health law and public health emergency preparedness graduate courses. As deputy director of a national technical assistance and training center on disability inclusion in emergency preparedness, she was lead subject matter expert, course content developer, and consultant to national, state, and local public health and emergency management organizations. While an Instructor, University of Massachusetts Medical School, she directed training, research, and service projects regarding disability inclusive emergency planning.

Affiliations and expertise

Consultant, Association of University Centers on Disabilities, Silver Spring, MD, United States Adjunct Faculty of Public Health, Massachusetts College of Pharmacy and Health Sciences, Boston, MA, United States

Katherine Snyder

Katherine Snyder JD, is a Public Interest Lawyer and advocate for people with disabilities. Previously a prosecutor in Florida, she represented interests of marginalized and disadvantaged victims and families. She worked with community and government entities on disaster planning for Florida’s hurricane seasons. In law school, she was editor-in-chief of the Journal of Law, Economics, and Race, and brought together authors and subject matter experts to represent law and references for articles. She worked directly with people with disabilities in residential, community, and therapeutic settings. Presently, she works for the State of Florida’s Children’s Legal Service, advocating for abused, abandoned, and neglected children.

Affiliations and expertise

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